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| Regional Support/Information Groups |
Below Are Regional Support/Information Groups. Some Are Online Groups and Others Are "Offline" Groups That
Meet Locally
"Offline" Support Groups:
Northeast Chiari Friends
Meets in: Kingston, NY, East Greenbush/Albany, NY, Pittsfield, MA, and Canaan, CT.
You can contact Jodie for more information by using one of the following emails:
churchill@fairpoint.net or:
northeastchiarisupport@hotmail.com
Chiari & Syringomyelia Support of the Greater Lehigh Valley
Meets on the first Sunday of every month, 2:PM, in the Banko Bldg. of Lehigh Valley Hospital/Muhlenberg campus.
They also have meetings scheduled on the following Wednesday evenings: 7- 9: PM:
June 18, 2008
August 20, 2008
October 15, 2008
For more information please contact one of the following people:
Sally Reusser: Contact Me
or Denise Siegfried: Contact Me
Chiari & Syringomyelia Family & Friends
A Arizona Chiari, Syringomyelia and related disorders support group.
Meets once per month, usually on a Saturday 2-4pm, Location varies to accomodate group members.
Mesa, Phoneix, Scottsdale, Chandler, Gilbert, Fountain HIlls, Glendale.
For more information Please contact Alana Volding: Contact Me
CNY ASAP Support Group
Meets the 2nd Wednesday of each month at the Canastota Public Library, 102 W. Center St. Canastota, NY.
Canastota is right off the NYS Thruway between the Utica-Rome area, and Syracuse NY. Meetings start at 6 PM
and usually end when the library closes at 8PM. The meetings are in the 2nd floor conference room. The library
is handicap accessible.
Tammi Brown chairs the group whose purpose is to support others with CM/SM, CFS, and Fibro as they deal with the pain
and fatigue caused by their disabilities. Often there are speakers like P.T.'s, nutritionist, massage therapist, etc.
who have helped people manage their symptoms.
For more information, contact Margaret Curtacci: Contact Me
The Southeast CM/SM Support Group
Meets in Columbus, Georgia
For more information contact Pam Holmes: Contact Me
Online Support Groups
Chiari-Pacific-Northwest-USA
Website:
Chiari-Pacific-Northwest-USA
Upstate NY Chiarians
Website:
Upstate NY Chiarians
Maryland Chiari Support
Website:
Maryland Chiari Support Group
North Carolina Chiari Support
Website:
North Carolina Chiari Support Group
ACM/EDS/TCS "Trifecta Group"
Website:
ACM/EDS/TCS "Trifecta Group"
Pseudotumor Cerebri
Website:
Pseudotumor Cerebri Group
Hydrocephalus Support "HYCEPH-L Listserv"
Website:
Hydrocephalus Support Group "HYCEPH-L Listserv"
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