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| Regional Support/Information Groups |
Below Are Regional Support/Information Groups. Some Are Online Groups and Others Are "Offline" Groups That
Meet Locally
"Offline" Support Groups:
Airzona Syringo Chiari Care & Support Group
Meets the 3rd Thursday of every quarter
Time: 11:00 - 1:00
Location: St. Joseph's Outpatient Rehab Center - 114 W. Thomas Rd
Our quarterly meeting includes time to visit & share before a planned speaker. We encourage friendship, lunch,
movies or just coffee during the other months.
For additional information, email us: Contact Us
Northeast Chiari Friends
Meets in: Kingston, NY, East Greenbush/Albany, NY, Pittsfield, MA, and Canaan, CT.
You can contact Jodie for more information by using one of the following emails:
churchill@fairpoint.net or:
northeastchiarisupport@hotmail.com
The Southeast CM/SM Support Group
Meets in Columbus, Georgia
For more information contact Pam Holmes: Contact Me
Chiari Pen Pals
My name is Jodie, Chiari Pen Pals is starting a pen pal group. It will be for all ages 18 and older. This is not
related to Chiari Connection International. If you are interested you can email your name, home address,email address,
age, male/female, to: Contact Me
Chiari People of Pennsylvania Support Group
"Chiarians helping one another with support and fundraising."
Place: The Children's Clinic of Wyomissing, 2240 Ridgewood Road, Suite 100, Wyomissing, PA 19610
Date: Every Third Monday of each Month
Time: 6:30 PM to 8:00 PM
Contacts:
Renee Tobias: Contact Me
Missie Ruth: Contact Me
Chiari Crusaders of SW MI
Meets second Saturday of every month
Fred Russ Forest on Marcellus Highway in Decatur MI
Time 3pm-5pm
Founded by:
Lisa Friend
Email: Contact Me
Phone: 269-317-5487
and:
Tonya McKee
Email: Contact Me
Phone: 269-635-2564
Indiana Support Group in Evansville
First Saturday of every month from 4-6pm for Chiari and its related conditions
Evansville,Indiana at Deaconess Hospital--2 Resource Center
Contact:
Bryan Cole
Carolinas EDS, Chiari & More Support Group
They meet every 2nd Saturday of the Month at 1:00pm - 4:00pm
There will be pillows for comfortable seating. You may bring your own pillows, comfy folding chair or any "tools & equipment" you may need.
Coffee, drinks & food at reasonable prices, but are not obligated to purchase anything. *No outside food or drinks.
You can see events at: http://www.chronicpainpartners.com/carolinas-eds-chiari-support-group/meetings/
Contact Information:
Call or text Crystal at 704-449-3517
Email: Crystal
Facebook: https://www.facebook.com/chiariedsbeyond
Online Support Groups
Chiari-Pacific-Northwest-USA
Website:
Chiari-Pacific-Northwest-USA
Upstate NY Chiarians
Website:
Upstate NY Chiarians
Maryland Chiari Support
Website:
Maryland Chiari Support Group
North Carolina Chiari Support
Website:
North Carolina Chiari Support Group
ACM/EDS/TCS "Trifecta Group"
Website:
ACM/EDS/TCS "Trifecta Group"
Pseudotumor Cerebri
Website:
Pseudotumor Cerebri Group
Hydrocephalus Support "HYCEPH-L Listserv"
Website:
Hydrocephalus Support Group "HYCEPH-L Listserv"
ACM Hampton Roads
Website:
ACM Hampton Roads
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