Chiari Connection International

Chiari Connection International

 
Regional Support/Information Groups
Below Are Regional Support/Information Groups. Some Are Online Groups and Others Are "Offline" Groups That Meet Locally

"Offline" Support Groups:


Airzona Syringo Chiari Care & Support Group

Meets the 3rd Thursday of every quarter
Time: 11:00 - 1:00
Location: St. Joseph's Outpatient Rehab Center - 114 W. Thomas Rd

Our quarterly meeting includes time to visit & share before a planned speaker. We encourage friendship, lunch, movies or just coffee during the other months.

For additional information, email us: Contact Us


Northeast Chiari Friends

Meets in: Kingston, NY, East Greenbush/Albany, NY, Pittsfield, MA, and Canaan, CT.
You can contact Jodie for more information by using one of the following emails:
churchill@fairpoint.net   or: northeastchiarisupport@hotmail.com


Chiari & Syringomyelia Support of the Greater Lehigh Valley

Meets on the first Sunday of every month, 2:PM, in the Banko Bldg. of Lehigh Valley Hospital/Muhlenberg campus. They also have meetings scheduled on the following Wednesday evenings: 7- 9: PM:

For more information please contact one of the following people:
Sally Reusser:  Contact Me
or Denise Siegfried:  Contact Me


The Southeast CM/SM Support Group

Meets in Columbus, Georgia
For more information contact Pam Holmes:  Contact Me


Chiari Pen Pals

My name is Jodie, Chiari Pen Pals is starting a pen pal group. It will be for all ages 18 and older. This is not related to Chiari Connection International. If you are interested you can email your name, home address,email address, age, male/female, to:  Contact Me


Chiari People of Pennsylvania Support Group

"Chiarians helping one another with support and fundraising." Place: The Children's Clinic of Wyomissing, 2240 Ridgewood Road, Suite 100, Wyomissing, PA 19610 Date: Every Third Monday of each Month Time: 6:30 PM to 8:00 PM

Contacts:
Renee Tobias: Contact Me
Missie Ruth: Contact Me


Chiari Crusaders of SW MI
Meets second Saturday of every month
Fred Russ Forest on Marcellus Highway in Decatur MI
Time 3pm-5pm

Founded by:
Lisa Friend
Email: Contact Me
Phone: 269-317-5487

and:

Tonya McKee
Email: Contact Me
Phone: 269-635-2564


Indiana Support Group in Evansville

First Saturday of every month from 4-6pm for Chiari and its related conditions
Evansville,Indiana at Deaconess Hospital--2 Resource Center

Contact: Bryan Cole


Carolinas EDS, Chiari & More Support Group
They meet every 2nd Saturday of the Month at 1:00pm - 4:00pm

There will be pillows for comfortable seating. You may bring your own pillows, comfy folding chair or any "tools & equipment" you may need. Coffee, drinks & food at reasonable prices, but are not obligated to purchase anything. *No outside food or drinks. You can see events at:
Carolinas EDS, Chiari & More Support Group

Contact Information:
Call or text Crystal at 704-449-3517
Email: Crystal
Facebook: https://www.facebook.com/chiariedsbeyond



Syracuse Chiarians (Upstate NY Chiari/Syringomyelia/EDS/POTS/MCAD Support)

Members from all over Central New York and some from other areas of NY

We meet once a month somewhere around the Syracuse area for a face-to-face meeting and we participate in different Walks, Fundraisers, Events, raising awareness for Chiari, and other related conditions and issues.

Syracuse Chiarians Facebook Page

Contact Information:
Email: Kathryn Argiro






Online Support Groups

Chiari-Pacific-Northwest-USA
Website:  Chiari-Pacific-Northwest-USA

Upstate NY Chiarians
Website:  Upstate NY Chiarians

Maryland Chiari Support
Website:  Maryland Chiari Support Group

North Carolina Chiari Support
Website:  North Carolina Chiari Support Group

ACM/EDS/TCS "Trifecta Group"
Website:  ACM/EDS/TCS "Trifecta Group"

Pseudotumor Cerebri
Website:  Pseudotumor Cerebri Group

Hydrocephalus Support "HYCEPH-L Listserv"
Website:  Hydrocephalus Support Group "HYCEPH-L Listserv"

ACM Hampton Roads
Website:  ACM Hampton Roads
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