Chiari Connection International

Chiari Connection International

 
Chiari Connection International Support/Information Group
Chiari Connection International Yahoo Support Group


Chiari Connection International (CCI) was created for those who suffer from Arnold Chiari Malformation and related disorders. Related disorders can include: syringomyelia (SM); basilar invagination (BI); cranio-cervical instability (CCI); intracranial and intraspinal cysts; tumors of the cerebellum, brain stem and spinal cord; spina bifida (SB); hydrocephalus; pseudotumor cerebri (PTC); Ehlers Danlos Syndrome (EDS); and various connective tissue disorders. And possibly some not yet even discovered!

Chiari Malformation treatment has come a long way in the past 15 years thanks to surgeons and researchers who have dedicated their time to discovering why symptoms can continue to be bothersome, even after an apparently successful decompression surgery. This new understanding has led to a better quality of life for thousands who suffer from Chiari Malformation.

The group exists to offer support and to help you more fully understand the various aspects of Chiari Malformation, its related disorders and the treatment options available. Experts will post on the board often, answering questions and explaining new connections.


We would like to welcome anyone who needs support for the above conditions to join CCI on Yahoo Groups. Please click on the below link to join CCI!!!

Click Here To Join Chiari Connection International's Main Group
Click Here To Join Chiari Connection International's Main Group


We also have another group for parents of kids affected by Chiari and/or related disorders: "CCI Parents".

Click Here To Join CCI Parents
Click Here To Join CCI Parents

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Chiari Connection International